Tuesday, May 8, 2012

Getting back to full remission, slowly

Starting last Thursday evening, May 4, I was on my new BRAND Minocin regular capsules (not the Extended Release stuff). Within two days the difference was noticeable. While the "flares" that I was experiencing with the Minocin MR (extended release) were very slight, and not debilitating, they were definitely noticeable, and frightening, as each day brought a new joint under attack. I feel as this is a war against terrorists. The terrorists were popping up in different locations, launching a few rockets, then running back into hiding. The Minocin MR army was able to keep them at bay, but not knock them back severely enough to stop the machine guns and rocket launches. Then came the regular Minocin. TA DAH!! Take that, you terrorists! Wiping them out, destroying their weapons, leaving them scrambling without any way to attack. They are lurking now, in every joint. But the minute one pokes his head out of a window, the Minocin army rapidly fires their machine guns in his direction. It's a war, it will last forever, as long as I am alive. I know that. At least, for the time being, we are winning.

I have even been able to already reduce the dosage to once a day, and skipped Sunday entirely with no ill effects (was taking 2 doses per day of the MR). In a week or two, will go back to just one on Mon, Wed & Friday. So little antibiotic to do such a wonderful job!

And winning, too, because MY ARMY, the Minocin guys, is very good about not causing a lot of friendly fire. So far, my kidneys, liver, heart, all are in good shape. Blood levels are healthy. No, it is not safe to walk around without my army, but my minocin soldiers are doing a fine job!!

I am one of the luckiest RA patients there is. So many are suffering so badly, not only because of this horrid terrorist disease that lurks within us, but because the "friendly fire" from the treatment they are receiving is causing so much damage that they are losing the war, not from the enemy, but from their own army!

Again, I wish I could win the BIG lottery. I would definitely spend some money trying to make more patients aware of this antibiotic protocol. Maybe it will not work for everyone. I believe that NEW patients would probably be best served by this treatment. Maybe it works for me because of what causes my RA...the leaky gut thing. Maybe if they (the researchers, the doctors) could get a better grip on what else can cause RA, then there would be a better path to treatment. Maybe maybe maybe.

Let there be hope. I wish you all the very best, my heart aches for those of you in pain. I have been there (see earlier postings regarding the problem with generics). I have experienced your pain, and even if it was only for a few months, just that much was enough to send me into a horrid downward spiral, emotionally. Again, I was lucky. I figured out the problem, and my Dr. was willing to just let me keep trying this protocol. Tho he ticks me off because he does not want to try this with any other patients. SHAME!!


  1. Hi, I'm happy I found your blog. I have had RA for about a year and a half now....also with a leaky gut diagnosis. My Dr. hasn't even suggested this antibiotic but it makes perfect sense.

    Question: What is your RA factor? I looked up this med and it is stated that it is used for mild RA. Mine is severe with a RA factor of over 400.


    1. sorry I missed your note. When last checked, the RA factor was around 128. However, the other factor, anti ccp or whatever, showed quite strongly that I definitely still have RA (this was from the tests taken about 6 months ago). I hope you are able to try this. Please contact me personally and let me know how it is turning out. plframe-at-yahoo-dot-com